Together, We Are Going To Be

“Making Cancer Less Painful For Kids”

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Children with cancer experience pain, often severe and prolonged, over the course of their disease and treatment. A research team of internationally known health researchers and clinicians led by Dr. Christine Chambers (IWK Health Centre) and Dr. Jennifer Stinson (SickKids) are partnering with the Cancer Knowledge Network (CKN) to bring the best research evidence about children’s cancer pain to parents who need it through social media

Unfortunately, we know that children with cancer don’t always receive the best pain management possible, and that parents are often looking for more solutions at a time when they are stressed and exhausted. We cannot think of a better way to use the CKN platform than to fast track evidence-based information to parents, allowing them to serve as powerful advocates to help improve their children’s pain management.

We will be addressing this problem through a social media campaign for parents: “Making Cancer Less Painful For Kids” (#KidsCancerPain). The campaign is funded by a research grant from the Canadian Cancer Society (grant #703699).

Over the next 12 months, we will be bringing parents the very best, cutting-edge research evidence about children’s cancer pain – what causes it, common myths, how to assess it, how to treat it, and more! And we’ll be sharing this information with parents in a series of blogs, videos, images, Facebook posts, and Twitter chats, all posted and shared on our website and social media. The research team will be studying the reach of the campaign and its impact on parents.

Please join us, and spread the word. You can find our campaign content by following our hashtag #KidsCancerPain. Together, we are going to be “Making Cancer Less Painful for Kids”.

Links to the #KidsCancerPain content published to date are as follows:

Blogs

Videos

Social Media Images

Facebook Questions

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Twitter Chat

#KidsCancerPain Twitter Chat

Survey

  • Post-campaign Survey: Thank you to everyone who completed the #KidsCancerPain Survey (Sept/Oct 2017). The survey is now closed. Congratulations to the lucky winners: Facebook Announcement & Twitter Announcement

  • Pre-campaign Survey: Thank you to the over 300 parents who completed the Cancer Knowledge Network survey (summer 2016). The survey is now closed (click here to view the consent form). Congratulations to the lucky winners: Facebook Announcement & Twitter Announcement

 

CIHR Video Contest – Vote by Nov 30, 2017

The #KidsCancerPain video, “Making Cancer Less Painful for Kids“, has been entered into a competition held by the Canadian Institutes of Health Research’s Institute of Human Development, Child and Youth Health (CIHR IHDCYH). The goal of the competition is to feature videos with clear, evidence-based messages that have a positive impact on the health of children, youth, and families.

A portion of the final score is related to the number of votes or likes each video gets and so we need your help! Please give the #KidsCancerPain video, Making Cancer Less Painful for Kids“, a “thumbs up” on YouTube to register your vote!

 

Pain Squad App Research Study

  • If you are participating in the follow up for the research study using the Pain Squad App (launched in July 2016 with follow up October/November 2017), then please click here to access the consent form.

 

Media stories about #KidsCancerPain

Graphics

To view free materials you can download and share related to the #KidsCancerPain initiative, click here.