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Together, We Are Going To Be

“Making Cancer Less Painful For Kids”

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Children with cancer experience pain, often severe and prolonged, over the course of their disease and treatment. A research team of internationally known health researchers and clinicians led by Dr. Christine Chambers (IWK Health Centre) and Dr. Jennifer Stinson (SickKids) partnered with the Cancer Knowledge Network (CKN) to bring the best research evidence about children’s cancer pain to parents who need it through social media.

Unfortunately, we know that children with cancer don’t always receive the best pain management possible, and that parents are often looking for more solutions at a time when they are stressed and exhausted. We cannot think of a better way to use the CKN platform than to fast track evidence-based information to parents, allowing them to serve as powerful advocates to help improve their children’s pain management.

We addressed this problem through a social media campaign for parents: “Making Cancer Less Painful For Kids” (#KidsCancerPain). The campaign is funded by a research grant from the Canadian Cancer Society (grant #703699).

We brought parents the very best, cutting-edge research evidence about children’s cancer pain – what causes it, common myths, how to assess it, how to treat it, and more! And shared this information with parents in a series of blogs, videos, images, Facebook posts, and a Twitter chat, all posted and shared on our website and social media. The research team is also studying the reach of the campaign and its impact on parents.

Please join us, and spread the word. You can find our campaign content by following our hashtag #KidsCancerPain. Together, we are going to be “Making Cancer Less Painful for Kids”.

Links to the #KidsCancerPain content published to date are as follows:

Blogs

Videos

Social Media Images

Facebook Questions

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Twitter Chat

#KidsCancerPain Twitter Chat

Survey

  • Post-campaign Survey: Thank you to everyone who completed the #KidsCancerPain Survey (Sept/Oct 2017). The survey is now closed. Congratulations to the lucky winners: Facebook Announcement & Twitter Announcement

  • Pre-campaign Survey: Thank you to the over 300 parents who completed the Cancer Knowledge Network survey (summer 2016). The survey is now closed (click here to view the consent form). Congratulations to the lucky winners: Facebook Announcement & Twitter Announcement

 

Pain Squad App Research Study

  • If you are participating in the follow up for the research study using the Pain Squad App (launched in July 2016 with follow up October/November 2017), then please click here to access the consent form.

 

Media stories about #KidsCancerPain

Graphics

To view free materials you can download and share related to the #KidsCancerPain initiative, click here.