Together, We Are Going To Be
“Making Cancer Less Painful For Kids”
Children with cancer experience pain, often severe and prolonged, over the course of their disease and treatment. A research team of internationally known health researchers and clinicians led by Dr. Christine Chambers (IWK Health Centre) and Dr. Jennifer Stinson (SickKids) are partnering with the Cancer Knowledge Network (CKN) to bring the best research evidence about children’s cancer pain to parents who need it through social media
Unfortunately, we know that children with cancer don’t always receive the best pain management possible, and that parents are often looking for more solutions at a time when they are stressed and exhausted. We cannot think of a better way to use the CKN platform than to fast track evidence-based information to parents, allowing them to serve as powerful advocates to help improve their children’s pain management.
We will be addressing this problem through a social media campaign for parents: “Making Cancer Less Painful For Kids” (#KidsCancerPain). The campaign is funded by a research grant from the Canadian Cancer Society (grant #703699).
Over the next 12 months, we will be bringing parents the very best, cutting-edge research evidence about children’s cancer pain – what causes it, common myths, how to assess it, how to treat it, and more! And we’ll be sharing this information with parents in a series of blogs, videos, images, Facebook posts, and Twitter chats, all posted and shared on our website and social media. The research team will be studying the reach of the campaign and its impact on parents.
Please join us, and spread the word. You can find our campaign content by following our hashtag #KidsCancerPain. Together, we are going to be “Making Cancer Less Painful for Kids”.
Links to the #KidsCancerPain content published to date are as follows:
- September 11: Cancer Pain at End of Life by Marjorie McGibbon
- August 10: Post-Operative Pain: Phoebe’s Story by Jenny Doull (@JennyDoull1)
- July 6: Managing Your Child’s Pain from Cancer Procedures by Dawn Norman
- May 10: Tips to Manage Your Child’s Needle Pain by Jenessa DeCoste & Jenna Schwanke
- November 9: Tools to Help Assess Your Child’s Cancer Pain by Sue McKechnie
- September 19: Unlocking the Mystery of Your Child’s Cancer Pain by Dr. Kevin Weingarten
- July 26: Together, We Are Going To Be “Making Cancer Less Painful for Kids” by Dr. Christine Chambers (@DrCChambers) and Dr. Jennifer Stinson (@DrJenStinson)
- August 8: Helping your child cope with cancer related pain
- December 8: How will cancer pain affect my child?
- July 27: Together we will be “Making Cancer Less Painful for Kids”
Social Media Images
- September 7: When cancer treatment ends, pain can last.
- August 31: Holding hands helps.
- July 20: Acting calm helps kids be calm
- May 29: Numbing cream can help reduce children’s pain from needle procedures
- April 6: Hypnosis can help manage pain from cancer treatments
- December 14: Your Child + Technology = Easier Pain Management
- November 24: When you know how much pain your child has, you are better able to help. Pain assessment tools make this easier.
- September 29: Managing cancer pain has a positive impact on a child’s health and recovery
- August 24: Getting reliable & accurate information into the hands of children’s greatest advocates: their parents.
- August 21: How do you help your child feel relaxed when they are in pain?
- June 6: How do you distract your child from painful procedures?
- December 1: How do you tell how much pain your child is having?
- October 6: Which medical procedure has your child found to be the most painful?
- September 15: How does your child cope with pain and also ways that you, as a parent or caregiver of a child with cancer, cope with your child’s pain?
- July 27: We held a Thunderclap at 9:00 PM ET to launch #KidsCancerPain.
- September 12: View the Storify of the #KidsCancerPain Twitter chat
- Post-campaign Survey: Thank you to everyone who completed the #KidsCancerPain Survey (Sept/Oct 2017). The survey is now closed. Congratulations to the lucky winners: Facebook Announcement & Twitter Announcement
- Pre-campaign Survey: Thank you to the over 300 parents who completed the Cancer Knowledge Network survey (summer 2016). The survey is now closed (click here to view the consent form). Congratulations to the lucky winners: Facebook Announcement & Twitter Announcement
CIHR Video Contest – Vote by Nov 30, 2017
The #KidsCancerPain video, “Making Cancer Less Painful for Kids“, has been entered into a competition held by the Canadian Institutes of Health Research’s Institute of Human Development, Child and Youth Health (CIHR IHDCYH). The goal of the competition is to feature videos with clear, evidence-based messages that have a positive impact on the health of children, youth, and families.
A portion of the final score is related to the number of votes or likes each video gets and so we need your help! Please give the #KidsCancerPain video, “Making Cancer Less Painful for Kids“, a “thumbs up” on YouTube to register your vote!
Pain Squad App Research Study
- If you are participating in the follow up for the research study using the Pain Squad App (launched in July 2016 with follow up October/November 2017), then please click here to access the consent form.
Media stories about #KidsCancerPain
- Interview with Dr. Christine Chambers. (2016, June 22). CBC News: Nova Scotia (interview begins at 31:55).
- Improving knowledge of kids’ cancer pain through social media. (2016, June 22). Dalhousie University News: Faculty of Medicine.
- #KidsCancerPain to help parents manage their children’s illness. (2016, June 26). CBC News: Nova Scotia.
- Our housecall focuses on cancer treatment. (2016, June 27). Interview with Perri Tutelman. CTV News Atlantic.
- Making Cancer Less Painful for Kids (interview with Dr. Christine Chambers & Dr. Conrad Fernandez) (2016, July 5). Global News.
- Demeter, J. (2016, October 6). #KidsCancerPain Campaign and the Cancer Knowledge Network (Dr. Christine Chambers and Dr. Jennifer Sinson). Childhood Cancer Talk Radio Podcast. Click here to download the podcast. Click here to watch on YouTube.
- Sutherland, S. (2017, November 1). Kids in Pain. RELIEF: Pain Research News, Insights, and Ideas.
To view free materials you can download and share related to the #KidsCancerPain initiative, click here.