Links

Self Help Links

  • About Kids' Health - an information resource for parents of children with pain, provided by the Hospital for Sick Children in Toronto.
  • American Pain Foundation - a nonprofit information resource and patient advocacy organization serving people with pain.
  • Angel Flight West - an organization of pilots and other volunteers dedicated to serving the community by providing FREE air transportation on private aircraft to people who cannot access or afford regular commercial transportation to healthcare.
  • Arthritis Society of Canada - provides information and strategies that illustrate how people with arthritis may lead long, fulfilling lives.
  • Aya's NoPainZone - a "kids-to-kids" resource site for teens and children about reflex sympathetic dystrophy.
  • Band-Aides and Blackboards: When Chronic Illness...or Some Other Medical Problem...Goes to School - a site for kids and adults about what it's like to grow up with some type of medical problem that doesn't go away.
  • Cancer Pain Relief for Patients & Families - provided by the University of Iowa College of Nursing.
  • Candlelighters Canada - a national support and information network with international affiliation dedicated to enhancing the quality of life of children and teens with cancer, their families and all those who care for and about them.
  • Candlelighters Childhood Cancer Foundation (USA) - an international, nonprofit organization whose mission is to educate, support, serve and advocate for families of children with cancer, survivors of childhood cancer and the professionals who care for them.
  • Canuck Place Children's Hospice provides specialized (palliative) care for children living with progressive life-limiting illnesses and their families in British Columbia.
  • Children's Hospitals - a comprehensive, international list of hospitals with an Internet presence compiled by PEDINFO.
  • CommonThread.org - a program aimed at changing the day-to-day experience of being a seriously ill or disabled child by making it possible for these children to talk to kids from around the world.
  • Enfant Do - an excellent French language site for professionals and children about pediatric pain.
  • Families of Children with Cancer - a support organization for families living with the effects of childhood cancer who are (or were) treated at the Hematology/Oncology Program at Toronto's Hospital for Sick Children (HSC).
  • Foundation for the Children's Oncology Group - a nonprofit, charitable foundation committed to improving access to state-of-the-art interdisciplinary team care of children and young adults with cancer and advocates for the needs of patients and the institutions providing such care.
  • Harvard Medical Center Network: Pain Management Homepage - case archives and pain chat with message boards.
  • Healthweb Pediatrics - a collection of links to specific, evaluated information resources on the World-Wide Web emphasizing quality information aimed at assisting health care professionals as well as consumers in solving their information problems.
  • "How to take the sting out of a kid's owie" - news story based on Leora Kuttner's work.
  • Kids' Place - resources and activities for children and youth who have chronic illnesses or disabilities.
  • KidsHealth.org - a site devoted to the health of children and teens with information for kids, parents and professionals (specific pain information is in the Parents section on the Healthy Kids page).
  • The Mayday Pain Project - contains carefully chosen Internet links and resources with objective information concerning the treatment of pain for pain sufferers, family members, caregivers and medical professionals.
  • Pain.com: A world of information on pain - a collection of pain resources including a weekly column by a chronic pain sufferer, a listing of pain specialists in North America and an "Ask the Pain Doctor" section.
  • Pain Management Center - the basics of what pain is and the various tools and techniques used to manage it, provided by the Mayo Clinic.
  • Parents Helping Parents (PHP) - a multifaceted, comprehensive Parent Directed Family Resource Center for children with any kind of special need.
  • Partners Against Pain - aims to improve pain control through education, community outreach and pain medicine information.
  • Pediatric Pain Education for Patients & Families - provided by the University of Iowa College of Nursing.
  • Ronald MacDonald House Charities - established to help create "homes-away-from-home" for the families of seriously ill children receiving treatment at nearby hospitals. Here is a list of Canadian homes.
  • SPARADRAP (French & English) - a French national resource centre founded by parents and health practitioners to create and promote initiatives aimed at improving children's hospital experiences.
  • Special Love for Children With Cancer - offers programs year-round which provide children with cancer a chance to enjoy normal activities - to laugh, run, jump, swim, learn and make friends.
  • Touchstone Support Network - volunteer organization that provides emotional and practical support services for children with chronic or life-threatening illnesses.

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Research and Professional Links

Societies and Organizations

Practice Guidelines and Protocols

Miscellaneous

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Journal Links

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